A few days ago I randomly got tinnitus out of nowhere and I didn’t understand what’s up. An hour or so ago I finally understood/learned what’s happening to me and read up on tinnitus and I’m devastated. I’m only over 20 and having this for the rest of my life as it becomes worse is heartbreaking to me. I was already overly sensitive to certain noises and am in love with music but with tinnitus I lost something precious and permanently gained somethimg that I just will need to live with. I’m heartbroken and scared. I know I will learn to accept it within a week as my brain processes this new experience but right now I just feel gutwrenchingly horrible. Especially so when I was already having some other physical and mental health issues that I’m unable to cope with and this adds to the burden. I need some advice on how to live with it and some comfort in knowing of other people going through the same. Thank you. :(

(I don’t live is US if that matters in any way.)

  • CultLeader4Hire@lemmy.world
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    23 days ago

    I developed electric crickets in my left year about 8-9 years ago now, it’s not tinnitus because it’s not the little hairs in my ears it’s the nerve between my ear and brain shorting out but the result is the same - when I had my hearing tested they told me 3 months is the time most people either start being able to ignore it OR need supportive care, they offered someone to talk to and/or antidepressants if I hadn’t adjusted in 3 months, thankfully I did and I can tune it out, or tune in if I’m trying to sleep I can just listen to it and I fall asleep.

    I would talk to your doctor, if you haven’t already, for the physical aspect of it and mention to them you’re struggling mentally with it, it’s SUPER common to the point my doctors were addressing it preemptively so they might be able to give you tools to help make things easier.

  • baller_w@lemmy.zip
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    23 days ago

    I’ve had some success playing tinnitus ringing over headphones and it made it markedly better. Still comes and goes, but from what I understand, it’s encouraging the mind to start ignoring it. Kind of like going nose deaf.

  • Kiwi_fella@lemmy.world
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    24 days ago

    I’ve had Meniere’s Disease since I was 17, and the tinnitus comes with it at no extra cost. Thirty five years on and all I can say is you just learn to cope. Some days it’s louder and some days you don’t register it despite it being a constant. It’s tough at the start, but take some comfort in knowing you’ll adapt. There are plenty of people out there who’ve gone through what you’ve experienced, so you’ve already got a support community.

  • TryingToBeGood@reddthat.com
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    23 days ago

    go to an ear nose and throat doc. If this is sudden hearing loss, it can be treated. (Ask me how I know.) Don’t just live with it–see a doc.

  • Encrypt-Keeper@lemmy.world
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    24 days ago

    Assuming you go to the doctor and find out you do have tinnitus and it’s permanent, I can totally understand the panic you’re feeling right now. It’s a very existential, pit of your stomach sense of dread you’re feeling right now.

    As somebody with tinnitus that is likely more severe than yours is right now, and have had it as young as you if not younger, you will get used to it with time, to the point that 90% of the time, you won’t hear it at all. Right now it’s going to seem far worse and suffocating because more than anything the tinnitus is triggered by remembering that you have it. Since it’s going to be stuck on your mind for awhile it might feel like you’re suffocating under it but as bad as I have it, it really is only an occasional annoyance.

    The important thing is to start protecting your hearing today. Ear plugs at concerts, plug your ears when the ambulance drives by, don’t blast the music in your car so loud.

    Don’t despair, when it’s really bad there are things that help like white noise, which can be generated on your phone or you can set up a fan at night. iPhones have a feature now that can add subtle nature sounds or white noise behind whatever else you’re listening to including music, if you find that’s something that helps you.

  • Saprophyte@lemmy.world
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    23 days ago

    I’ve had tinnitus for a number of decades. The least useful thing is people telling you that it’s only in your head and it’s a phantom noise. Tinnitus has been recorded previously and it does not exist as just a mental issue. It is a real and physical thing.

    I sleep with a humidifier, the small fan makes just enough white noise where it helps to drown out some of the ringing. I also gave up on my standard headphones and primarily used bone conducting headphones now to prevent further problems. Also, unfortunately, I no longer ride with the windows down in my car because the constant pressure changes make my ringing go off the rails. That used to be one of my favorite things to do in the winter.

    With minor adjustments it doesn’t make things go away, but you can help to manage the symptoms. I still have tinnitus, even as I sit down and write about this. However, it comes and goes and not everyday is full of squealing and no day is completely quiet, but hopefully you’ll find some comfort in the middle.

  • SaveTheTuaHawk@lemmy.ca
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    23 days ago

    Kind of surprised at this thread.

    There are no drugs, supplements, pills, etc that reduce tinnitus. Do not waste your money. But, you should get a doctor to refer you to the specialist.

    There is a audisensory feedback device that is FDA approved, but the trials were not controlled and the effects were only self reported. It’s called Lenire. Very expensive but they have a trial period that cost $300.

    • Apytele@sh.itjust.works
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      24 days ago

      Sudden onset is very concerning OP. In the US most pharmacies have a blood pressure check station. If the top number is over 160 and/or the bottom number is over 110 go to an urgent care, if the top number is over 180 go to an ER. If your blood pressure is normal make a primary care appointment or audiologist appointment because sudden onset still highly suggests that it’s a secondary symptom that may very well go away when the underlying cause is treated.

      TLDR; good news very possibly not actually permanent, bad news, you actually really need to check that you’re not sick.

    • Martineski@lemmy.dbzer0.comOP
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      24 days ago

      After a few tests the SYS is in the range 120-140+ while pulse is consistently ~115-120. So per this chart it’s stage 2 as I understand. But I think I put the device wrong initially (or I do now) since the last few results after correcting have consistently been 120-~127 for SYS. I don’t understand the results and am not sure what to do with them. :(

      Edit: I’m about to depart in the middle of the night for emergency visit.

  • Elting@piefed.social
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    24 days ago

    Ive had tinnitus throughout my living memory. Unsure if it’s because I was a loud child or something inherent to my physiology. Maybe having no memory of perfectly crisp hearing makes it easier to forget, but I can’t say that it has truly affected my quality of life. I can still sing in a choir and listen to jazz. Mine might be a milder case, I have no way of knowing, but please don’t allow it to keep you from doing what you enjoy.

  • Raffster@lemmy.world
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    23 days ago

    Had it since I was 12 and it’s pretty strong decades later. At first it bothered me, then I learned to accept it and it’s been a non issue since (except from the hearing damage of course).

  • Hanrahan@slrpnk.net
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    23 days ago

    it sucks,. I’ve lived with it for decades and mostly manage by tuning it out because you have no real choice.

  • riquisimo@lemmy.dbzer0.com
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    24 days ago

    I have it, caused my hearing damage (non genetic). I’ve noticed some muscle relaxers will increase the sound, but when the meds wear off it goes back to normal.

    Broadly speaking, I live in a quiet environment. Over there past few years it seems like it’s gotten better. Like since I hear it slightly all the time my brain ignores it better. YMMV.

    But yes, see a doctor about it. And don’t freak out. What comes on suddenly may go away slowly too. My sudden episodes sometimes last two weeks, but they subside.