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Joined 1 year ago
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Cake day: July 10th, 2025

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  • Hashimoto’s supposedly doesn’t cause rashes, although apparently a lot of us have skin issues. Supposedly I just have rashes from the eczema 🥲

    Hashimoto’s attacks your thyroid, which is super important for keeping you alive. It kills your thyroid over time and significantly increases your risk of developing thyroid cancer. The current “treatment” is hormone replacement as the thyroid dies :) And some doctors recommend going gluten-free (something about the protein of the thyroid gland resembling gluten + increased risk of developing Celiac iirc?)

    Some people with Hashimoto’s have no symptoms once they’re on hormone replacement. Others may still have symptoms like GI issues, mood swings, weight gain, increased blood glucose, fatigue, joint pain, feeling cold a lot, menstrual issues, headaches, just to name a few off the top of my head (but there any many)

    No one ever told me this part (I was diagnosed over a decade ago), but we also actually have higher nutritional needs. The body is CONSTANTLY using resources attacking itself, the same resources it would normally use for something like an infection. So we’re more prone to nutritional deficiencies, like iron, B-vitamins, and vitamin D.

    There have been “rare” instances where the antibodies have started attacking the brain (I use quotes because Ha Ha It’s Hard To Get Doctors To Investigate Anything, could be affecting more people than we know!)

    Depending on how much hormone your thyroid can still produce, you might be able to go some time without your thyroid meds. First few years of my diagnosis I technically didn’t “need” meds, but I took them occasionally because research showed that starting them before needed can slow the progression of the disease. Now I can maybe miss a day and not really notice… more than that and I start noticing it. I’m still on a low dose, so I imagine my body is still making enough hormone that I could probably live a few months without it while feeling very shitty and doing damage to my organs.

    If your thyroid isn’t producing enough hormones and you aren’t on treatment, you will eventually decline and go into a coma. You can still be treated at this point… but without treatment, bye 😭




  • Just going to jump in immediately with my thoughts as a disabled person with an ESA, since I often see a lot of anti-ESA sentiment from people I would expect to be allys.

    If you understand the actual law - no one “abuses” the ESA policy. There has never been an ESA registration. It has been a note from an actual medical professional that you see for treatment stating that the animal is medically necessary, and this only applied to housing.

    Anyone who accepted “ESA registrations” didn’t understand the law, anyone who said ESAs could be in public places did not follow the law.

    You should not be okay with punishing disabled people because other people aren’t following the law.

    Maybe fine people who break the law and put that money towards programs that improve the lives of disabled people.











  • Anecdotally, it can be contagious.

    I live in one of those most dangerous towns in my country. We have a Facebook group where people will proudly act really nasty toward each other.

    One time someone was mean to me and it was unwarranted. I think anyone wouldn’t’ve blamed me if I called her out.

    I can be nasty myself. A lot. ESPECIALLY if I’m being attacked. But I’m trying to work on it.

    For whatever reason, in this situation I happened to remember that I’m trying to work on it. And as badly as I wanted to be the bigger bitch, I chose to be the bigger person and I chose to respond with kindness. And I felt like shit. And I felt mad that I wasn’t “defending” myself.

    It caused a chain reaction that I’ve never seen in this town. People were hopping into the replies also offering kindness to this person.

    This was awhile ago and I still feel great about it. Which is another benefit.

    You’re way more likely to regret being mean than you are to regret being kind.






  • pieland@piefed.socialOPtoFediverse@lemmy.worldno meta may challenge (wip?)
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    4 months ago

    https://venngage.com/tools/accessible-color-palette-generator is what I used for the color palette

    i took the hex code of the meta logo and inverted it (anti-meta theme) for a hex code of #F9971E and generated a palette. this was one of the palettes. i went with a more monochrome palette for people who may have trouble distinguishing between colors.

    as i do not have any relevant visual impairments myself, i cannot comment on the readability/accessibility.

    saying “i don’t think this is accessible” is not helpful (you’re not the only person who has said this) as it does not tell me what is accessible.

    i myself am severely disabled and unable to work and living in extreme poverty. i came up with this idea, shared it on social media, and asked if anyone would be willing to make a graphic. no one did.

    if the cause matters to you, you always have the option to make your own graphic. i literally cried several times making this because i do not have the energy, the time, or a usable device to make this, or the money to purchase anything usable. i made it on my phone on the free version of Ibispaint, which is the equivalent of using ms paint with a trackpad, if not worse. i have shaky hands and painful joints.

    as for my migraine, i can’t comment on that, as i have chronic migraines. we are advised to avoid noise and bright screens. if i do that i’m stuck listening to the convincing voices in my head screaming at me to kill myself while still being in physical pain. i prefer to continue to be in pain while deluding myself into volunteering time and energy i do not have trying to make this world a better place only to achieve nothing and to have ended up wasted time and getting shit on for it, while everyone else who does have the time, energy, and resources complains that no one ever does anything.

    if i took spent hours on this (yes, this took hours because of how unusable the app is), other people can take a few minutes to explain to me how i can make this accessible, if it’s something they actually care about and aren’t just virtue-signaling. or! they can take a few minutes to make an accessible graphic themselves






  • fedibook seems really new; i think it’s only been up for a few weeks? but it looks close to facebook, and apparently has an option to import facebook posts

    i couldn’t find any screenshots of it, but i took some of my own after making a throwaway account

    for me, it just feels closer to facebook design-wise than friendica and diaspora. every friendica instance that has a normie-friendly url seemed glitchy or just flat out took forever to load. before i stumbled upon fedibook, i was thinking about recommending spacehey or bliish (which are also interesting, but spacehey is invite-only right now; can’t remember what i didn’t like about bliish)